Tag: autistic children

A Joined Up Approach?

I am shear knackered at explaining down various phone calls that we need help.

You hear of stories of runaways, suicide, domestic abuse, child abuse, sectioned, physical assault, and what not.

Did you ever care to think how long the story has been going for? What made the escalation happen? Where were the authorities with their ‘duty of care’ and the laws that are meant to protect the vulnerable?

I have suffered the whole rigmarole this week, left the waiting of various call backs.

Then I think to myself, no wonder those with disabilities or differences are left behind,

Those privileged not be coloured, disabled, and / or female, actually can just get on with achieving their goals. The ‘other’ group should be able to as well, in theory, except before they get round to completing that training, they must first:


Email school about lack of provision and understanding of autistic teen.

Email school about racist incident with the said teen.

Deal with his anxiety attacks about going to school, working with Microsoft Teams, losing previously saved work.

Find the right social work department who can assess our teen’s needs

Request statement of need from CAMHS, again, 10 weeks after initial request… for tribunal for DLA. DWP supposed thing that the teen does not have any extra needs compared another 13 year old. Try telling him that when he can’t tolerate his own siblings in the same room and then made to sit in a class of 30 and lunch hall of 200. Or when he can’t read his own handwriting because he can’t hold a pencil correctly. Or he has another pair of ripped joggers because he can’t stop falling over or tumbling, or ‘accidently’ poking his clothes. Maybe ask me how I feel trying to set up my business after being kept up all night with his ridiculously poor sleep.

Why is a joined up approach so difficult? Why is it so hard to believe and acknowledge another person’s difficulty by parking one’s own prejudice. I get it that we see the world through our own limited lens but why not just believe the frustrated mother down the line saying that the teen isnt coping?

How are we supposed to get on with achieving in life if the able-bodies, privileged-coloured don’t effect systems productively to allow for barriers to exist?

The shear exhaustion of dealing with their barriers is what hinders our progression. Not our lack of abilities. Did anyone ever think what toll it takes on a person’s mental health and time when subjected to any form of discrimination and abuse? Its a kick in face that takes time to get over and heal by which time the privileged counterpart cab get on with life.

What would also help, is not having the added difficulties induced naturally by our bodies. Men don’t have to deal with that on top the emotions of a banged up parent. Even better would be do things naturally and actually have two parents deal with the children, abled and disabled.

This is not a hot aired rant. This is a reflection of how society discriminates, how only the affected actually fight to make a difference, otherwise if its not broken (for you) why fix it?

If you can relate to what I wrote here, please share and leave a comment.

See the source image
Scotland’s Wellbeing Wheel for Children

Are we Getting It Right For Every Child?

Holding the Strings

Many people think that once the you have separated, that the abuse is over.

The taste for control is so addictive that the addict will do anything to get a hit. Whether that means hurting their own children, or even blocking their own future progression. In the rage of vengeance, they are blind to the damage caused around them. Just to spite the freed spouse.

Live in peace, or part in peace.

He used to quote this throughout our marriage, every time he wanted to threaten a divorce. Now that it’s finally time, why hold back? Why deny our own beliefs. Doesn’t his faith dictate this? Isn’t he a part of a religion that means peace?

In an abusive marriage, the hurt continues, but in a distant way. This time the children are the means in which to control the spouse. It’s very common, and clever. More so with autistic sons. No boundaries, routines, infiltrating their head space without them even knowing. Drip feeding ‘propaganda’, as oldest described once, so that when they return home, I get the emotional outbursts and meltdowns. All the crap that was being held in is spewed out.

Then, any single minded observer would see how happy and easy the boys are with him (similar to how schools perceive them), leaving the blame of the messy emotions and struggles on me. It must be her. She can’t handle them, she doesn’t look after them. She is the bad mother.

Why don’t you just go away from them?

I was almost fooled to believe that I was parenting them wrongly. I did walk out for sake of my mental health when he pushed me out before. Not this time. I stood firm this time. I couldn’t let him in my head. I am the dumping ground for them because I am the safe person. I am forgiving. One man telling them and me that I suck at mothering, isn’t going to change our beliefs.

So as much as he tries to hurt me through them, with hidden threats to take them away, even from their sister, he can’t do anything but make horrid offensive noise. It’s hurts as a braying sound would and nothing more.

He doesn’t get the strings anymore.

.