My Faith Isn’t Weak

Too much uncertainty affects everyone.

I hear that. Especially in lockdown, everyone got a taste of being disabled. But not many actually acknowledged this.

Introverts and anxious folks know what I mean. These are just part and parcel for most autistics. Obviously I cannot comment on behalf of others, but from the people I have known and read from, I can firmly use Set Theory to describe as follows:

All autistics suffer anxiety but not all anxious people are autistic.

I don’t know why this is hard to understand.

I am writing right now as I sit on my bed feeling despair. A very important religious festival just came and went that did help ground me somewhat. A realisation came to me as I had a short burst of emotion.

My faith is not weak. My brain is just made differently.

Anxious and depressed Muslims are normally told that their mental health issues are caused by lack of firm belief in the plan of Allah. I have firm belief. For example, I know just as dawn happens every day, that if I give in charity, I will get more in return. I have never been disappointed so I use this as a strategy to invest when I know income is insecure. Works a treat. See? Belief in the ghaib, the Unseen.

So how come I have this anxiety? It’s not because I am not confident that a result will come. It’s because I don’t know what it will be, when I will get it, what it will look like. I can accept those outcomes when they come. Like, will I get work as a supply teacher? Will I get more terrorist type comments when I wear a face covering? Will I have SWAT images going on in my head if I wear a visor? Which school? How long? Fixed term? Finances? Business? Caring? Moving? Selling up? Separation agreement? Financial settlement? U’s diagnosis? DLA tribunal? Wee one’s SLT referral?

I don’t have new clothes for work. I have the same wardrobe with very few additions from the past few years. Will I go back with the same? But I hate shopping! Kids still haven’t been kitted out for school!

I will leave by sharing a piece of writing I spontaneously conjured up few weeks back on a mental health Zoom for autistic women :

With the wind blowing, even the mighty trees bow to their Creator. Who are we to stand rigid? In our superior intellect, we still shrivel with the smallest of change out with our control. The grace of nature in it’s ability to adapt and accept what’s not in our control, should humble our ego. How can we not take change in our stride? How does the world continue to revolve, when mine has been turned upside down?

Tangled Emotions

29/07/20

Yesterday I managed to flush out the stuck feelings. Even if that meant picking a hallow argument about unmet motherly needs with oldest.

I still don’t feel much lighter. Maybe it’s pms, as the sister picked up on. And the snapping doesn’t help. Everything just tangled together. I am back to being unable to communicate with neurotypical adolescent daughter because her snarky voice is painful. The tone, pitch, the backchat. It’s the same theme I complained about to all three. Lack of respect. How are they to find respect when their father done such a good job of portraying me as the weak, mentally incapable and unstable parent, with whom their life will be a failure?

I seen how his ploy was working so well. I am the emotional mess and he is the calm. I just shut myself out from all three and let it out. For the past week those images returned in my head.

Get a knjfe to the arm.

That’s exactly what he wants. But it’s a release. No one sees how even while not living with us, he seeks control. His mind games mess with the kids. Oldest had to have a non-human contact day last Friday because he was so exhausted. He laster told me that he had a cry that made him feel lighter. I told him I was proud that he recognised his emotions and let himself cry it all.

Interestingly, the boys were not in a hurry to go back for another week. It took them a week to recover from the last one.

I have regressed to my poor focus and motivation, becoming addicted to Bubble Shooter, finding it relaxing. Actually playing that helped me listen to business coaching last night. Pen and paper to hand and playing the game then stopping to take notes. It reminded me of narrowing teachers expectations on autistic pupils.

After the blow of emotions, today, both of were trying to make sense of what happened. I managed to explain that I also have needs of wanting to feel respected and valued and my children weren’t showing this at all. This actually enlighten oldest son.

“Oh, I thought needs were one way in parent-child relationship. The parents tends to the child’s needs.”

Then he went to realise, “that what a spouse is for.”

A big shrug from me followed.

“Well I don’t have one. He didn’t exactly fulfil that need either.”

and then I pointed out, which may have been provoked because of a recent (painfully long) phone call with my father, who I would call estranged, and just very strange.

“I don’t fair well on the male relationship front. No father, no brother, no husband. Just two sons. But the difference is that I raised you two, I have some control on your influences, values and behaviour. I want to shape you to be caring, empathic, self reflecting and able to keep good relationships.”

What’s hurt me so much is the thought of going to court to settle child contact. I have had enough waiting. Some may appreciate that autistics hate waiting . It’s torture. I have been good waiting out for negotiation but not that I have move forward, just to hurt me, he wants to argue in court. It’s the waiting to get a settlement done that’s hard to swallow. The stress of not being able to demonstrate that I am their best option, the fear of not being believed. Not many believe me. I refer to those with power to do something. They never believe me. Whereas he can so easily push my buttons, set off the reactions and say “told you so, she is incapable of being a good mother.”

I leave with one fact, as that’s all I use to reassure myself.
The social worker pointed out that in May, during lockdown, the oldest was doing well and we didn’t require their support.

“Oh that’s because he didn’t visit his father and I helped him with understanding the online learning systems (well I was his PA writing out his diary of to do and he calmed down hugely.

…oh, school and his father caused the meltdowns. I am the one constant that doesn’t harm him!”